Carissa Carroll shares how her non-profit empowers 11,000+ families, educates professionals, and celebrates babies with Down syndrome. 

Fellow podcasters Wunmi Bakare and Dima Hendricks open up about their experiences living with sickle cell disease and how they have become advocates.

Author Laura Kieger educates on the hereditary cancer syndrome, Familial Adenomatous Polyposis (FAP).

Despite being told she wouldn’t survive beyond her first week of life, Carrie has overcome extraordinary medical challenges, including severe blindness and hearing impairment from her rare 5th-degree facial cleft.

Jaime Albright Henighan shares her family’s journey after two of her sons were diagnosed with a rare genetic kidney disease called APOL1-mediated FSGS (Focal Segmental Glomerulosclerosis).

One parent's experience managing her child’s two conditions: type 1 diabetes (T1D) and celiac disease.

Host Beth Glassman opens up about her experience in childhood with the autoimmune condition uveitis.

Host Cathy Gildenhorn opens up about her path to parenthood starting with recurrent miscarriages and ending with the miracle of adoption.

Parent Laura Bonnell shares about her two daughters who were diagnosed with cystic fibrosis which lead to her advocacy.

Podcaster, Father and Advocate shares about his daughter and how he created adaptive toys and products for others in the disability community.

Patient advocate and parent Barbara Lazarus shares about her son’s condition and their doctor, Dr. Caroline Hastings, provides her expertise.

A deep dive into neuromuscular disorders with one of the field's leading experts, Dr. Robert Bucelli.

Discover how Alex Brito turns life with NMOSD into a story of strength, advocacy, and inspiration.

Dr. Susan Liebman’s powerful new book, The Dressmaker's Mirror, reflects on her family’s tragedies and how genetic insights can prevent cardiac sudden death and save lives.

Rachel shares her story of resilience after experiencing two episodes of Non-Arteritic Anterior Ischemic Optic Neuropathy (NAION), a rare and debilitating eye condition caused by insufficient blood flow to the optic nerve.

Cancer genetic counselor Gabrielle Shermanski shares her expertise in colon cancer including screening, risk levels, genetic testing and more.

On a vacation in Madrid Zach loses his vision and shares the scary experience and how he has adapted his life in the two years since.

At 19 years old Zach Ship’s life was threatened by kidney disease, his mother saved him by donating her kidney to him.

Her son, Zachary, was diagnosed with Membranous Nephropathy as a teen and quickly required a kidney transplant.

Author and advocate Tanita Allen shares about the delay in her accurate diagnosis of Huntington’s Disease and living with the condition.